Several
years ago my life simply didn't make sense. No
matter what I did, I simply didn't fit in. I
knew I was intelligent, hardworking and somewhat adventurous;
yet, despite my
best efforts at being
nice and friendly, I
struggled in social settings of all types. I had trouble at work, few
friendships, and couldn't make sense of dating. I lost several jobs,
had multiple social issues that were usually low intensity but were
often devastating emotionally and financially. I struggled with
feeling rejected especially anytime that I found myself in a
relationship with a young women. I wanted to be liked and loved and
be a ladies man, but I couldn't figure out how to
make sense of relationships no
matter how nice and friendly I was. To make it worse, I was “overly
logical” and interested in things that others frequently were not
interested in.
As
time went on, I
was becoming increasingly isolated. Even
though I had known that I had ADD for a long time, this certainly did
not account for all of my issues. I seemed to be learning to manage
my ADD better as I grew older, yet despite that, most of my issues
seemed to be getting more obvious. I was getting very depressed as I
began to despair. Ultimately,
this became an increasing source of rage and frustration in my life
that threatened to overwhelm my life. Nothing I was doing worked-I
was a misfit.
I was a misfit and I did not know why or what to do about it.
To
be clear, I was not a complete failure nor was I an unhappy person. I
had many, many hobbies and interests, and enjoyed them all. I had
some friendships that were left over from a brief happy period in my
late teens when my social life seemed to go well... yet these
relationships were becoming less satisfying as these friends grew up,
married, and began to have kids. Meanwhile, I seemed to be getting
more and more awkward around women.
More
frustrating than even the social
problems
I was having, was the fact that no one seemed to understand what was
happening in my life. I was taught to look up to elders, and so I
went to to all my friends and many church and community leaders for
advice. I was told to be patient, that I was rebellious, that I had
“spiritual problems”, that I needed to learn to “get along with
people”, that I was “unstable”, and that life and
my social skills would
some day get better on its own. I tried all the advice with
sincerity; however, as time went on the advice became more vicious
and people seemed to tell me that something was wrong with me with
growing conviction. I
knew I wasn't lazy... Even though I was a night owl and the early
mornings were not easy for me, I worked 60-90 hrs a week most of this
period on a farm. I
knew I was a deeper thinker than some and questioned everything but
this did not seem bad. I had been patient, and life was getting
worse... I was sliding deeper into depression and did not understand
it.
During
this time period I decided to switch my employment from agriculture
to EMS, and found that I had a gift for working well under pressure
and for understanding human anatomy. I progressed quickly in EMS and
despite social issues with coworkers I did fairly well; during this
time I assumed my social issues were the result of being raised in a
backwards rural community. This however began to break down as I
became fairly street smart but continued to have problems. I then
concluded that I simply
had a
little
trouble reading body language.
Also
significant during this period, I was introduced to computers and
programming and became obsessed. I learned Linux and began to mess
with coding for fun. Little did I know that my life was following a
common pattern. People with Asperger's often are drawn to computers.
After some time, I began develop friendships with a few "misfit" friends.
During a long conversation with one of these friends, I
realized that I needed to look at Asperger's
or high-functioning autism
as a possible answer. A few short months later, I was evaluated for
autism spectrum disorder by a psychiatrist. I found out that it
appears that I fit the profile of a person with high functioning
autism spectrum disorder (ASD), also formerly called Asperger's
syndrome. The psychiatrist did not have the courage to straight out
say that yes, I have ASD, but he told me I fit the profile. I'd like
to have a more official diagnosis, but mental heath-care in this
country is both expensive and terrible. Because
of the cost, I have simply realized that understanding that I have
Asperger's is an incredible
insight that
I have used
to move forward in life.
I
will never forget the relief that I felt after I found out that I had
autism; this
insight has
helped me to understand myself
and brought
healing in my
relationships and life. The period since I’ve been diagnosed has
been an extremely productive one in my life, with an unbelievable
amount of growth. It was one of the most healing, painful, and most
meaningful revelations of my whole life. I have found it healing to
realize that I am not weird, even if I am different than most. I have
begun to realize that I am not broken or diseased either, but that
people with ASD like myself tend to think, act, and communicate
slightly different than others. I
came to realize that many of my traits, are
normal in the autistic community. Like
many autistics, I have high intensity,
and
make frequent social
blunders. I
am obsessive
with studies of absolutes like math, computers, and science. When
I communicate, I am blunt, logical,
and
honest.
I
found out that even
my enjoyment of Sci-fi and star wars are almost stereotypically
autistic. It feels good to finally know I fit in, even if the group
that I fit in to is by definition weird; even so, it still feels good
to finally fit in, and I have even found some groups of autistic
adults that meet to socialize and share.
By
understanding how different I was from others, and that I am not
"weird" or "broken", I was able to forgive many
people, especially women, for misunderstanding me. This has been
quite healing to me, and helped me to become more healthy emotionally
and spiritually. I now realize that it was inevitable that they would
not ever have understood me, and that the fact that they didn't was
not really rejection at all. They simply couldn't have understood me.
This is also true of my parents.
Finding
out that I have autism, however, has not been all roses and
encouraging. Realizing that there is something very specific that is
different about me, and that I will never be able to change that, has
been very overwhelming at times. Most disappointing has been
discovering that there is a lack of research and literature about
adults with autism.
Despite
learning a lot, ASD is still very stressful. One of the one most
difficult things about ASD is realizing that no matter how much I
learn, I will still face social challenges that will be stressful. I
will lose relationships, miss promotions, and my GPA may lag behind
my effort and intelligence. I will often be managed, bossed, and
judged by people who are inferior in knowledge, intelligence, and
skill level to me. This is not about being negative, but about
realism; I must accept where I am in life, and what I can
realistically expect. I must anticipate challenges, and make plans to
avoid them. The more I learn, the more I plan, the better life will
be.
I
try to make a conscious effort stay upbeat, and take care of myself.
It is important to for me to manage my stress levels from these
challenges. I can do that in many ways. I've learned to understand
that like many people with ASD, I often lose track of their own
emotions as well as those of others. This realization has helped to
make me more aware of my lack of understanding of myself at times. I
have come to realize that I often do not know my own emotions, and
that talking about them, writing down the feelings that I don't
understand, and having supportive, accepting friends to bounce things
off of is essential to me. Autistics have a tendency to self isolate;
not only do they not realize or understand their social needs, but
they also become scared of social interaction because they are so
often misunderstood and heckled. I spend time with positive and
intelligent friends (some who also have ASD) several times a week.
I
also have learned that I need both solitary and social ways to
unwind. I am learning that I need to do something extra in the
evening 3-6 evenings a week. I spend time with friends, and am learning to play the bass. Taking up
a musical instrument and going to jams and lessons to practice is something that builds friendships with musicians, builds eye-hand coordination, and I've found that musicians are often great friends to Aspie people. I've also started
following several local bands and have become good friends with the
musicians. In short, despite all of the challenges of ASD, today I am
happier than ever before; I am more productive, have a larger social
circle , and a better understanding of myself and others. By
accepting and understanding who I am, I have been able to grow.
In writing a blog about my experiences, I hope to be able to encourage other adults with high functioning autism and Asperger's. I also hope that I can be of help to parents that have kids with ASD, and that through my voice they can understand their kids better. I know that sometimes I will write in a level headed way and have good advice, but in other posts my frustration may be seen. I hope that in each post I can be kind and charitable, yet honest. I hope that you will follow my blogs and sign up to receive them, and that you will post responses and questions and comments so we can all learn together.
-Calvin Johnson
Note:
In using the term "misfit" as a description of myself and my experiences, I realize that some may misunderstand me. At times in my life I have seen this as a negative thing, but now I am happy to be myself and to grow. I am glad I am a misfit, am glad that I am geeky, and would not want to be any other way. I hope you can understand that I do not feel sorry for myself, and use this word in a liberating, humorous, and self-deprecating way.